Meet Camryn and Mia; 8 and 10 years old who live in Lagrangeville, NY.
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★Meet Evelyn She is just 3 years old from Staatsburg NY. She was diagnosed with B-Cell Acute Lymphoblastic Leukemia in February of 2023.
Evelyn is currently undergoing treatment at Maria Fareri Children's Hospital, a member of WMCHealth. Ryan’s foundation helped pay for the family’s car payment to hopefully ease any financial stress during this time. God bless Evelyn and her family! |
★Heaven has gained another warrior. Saniyah passed away October 3rd, just one day shy of her 14th birthday.
Ryan’s foundation helped Saniyah when she was just 4 years old after being diagnosed and born with epilepsy, cerebral palsy, periventricular leukomalacia, and gtube for feeding. Ryan’s foundation was able to install a stair lift for the family in 2014. Please keep her family in your thoughts and prayers. Saniyah is now our guardian above. God bless! |
★Meet Mae. She is just 6 months old and suffers from Intractable epilepsy and Chromosomal anomaly. She has uncontrollable seizures multiple times a day that last between 2-6 minutes; sometimes longer. When experiencing a seizure, she goes into respiratory distress.
She had an extended NICU stay at Westchester Medical Center from birth (November 2022) to January 2023, multiple ER visits from January to February and in March, she was hospitalized and required an extended stay. She has continued to date to require frequent ER visits and close monitoring. Ryan’s Foundation paid for transportation via ambulance from Westchester Medical to Blythedale Children's Hospital for acute rehab for her feeding therapy. Please keep Mae and her family in your thoughts and prayers as she continues her fight. |
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★Meet Hazel Grace Darling, born on July 28th at Vassar Brothers Hospital. Shortly after being born, mom and dad were told that baby Hazel has racheoesophageal fistula, where her esophagus and trachea are attached. Due to her condition, Baby Hazel would need surgery immediately. She was airlifted to Maria Fareri Children's Hospital, a member of the WMCHealth for surgery and is currently still there.
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★Today, Ryan’s foundation along with DC 10-13 Foundation of the Hudson Valley bought and installed an automatic generator for Anna; Hope for Anna. We helped Anna back in 2018 with a micro silk tub.
Anna is from Ulster County who suffers from a rare disorder called harlequin icythosis. Harlequin ichthyosis is a severe genetic disorder that mainly affects the skin. Infants with this condition are born with very hard, thick skin covering most of their bodies. Temperature controlled air is pivotal for Anna’s skin and a generator is necessary whether it is extreme heat or cold winters. Thank you to all those involved: Millbrook Electric, Z-3 Consultants, DC 10-13 Foundation and Bill Riley, Jeremy Busolt and George Busolt for the install. |
★Everyone meet Asher! Asher is 10, turning 11 tomorrow and suffers from DiGeorge Syndrome, CP, Seizures, Hydrocephalus, and bronchopulmonary dysplasia.
Ryan's Foundation was able to purchase him a therapeutic scooter to increase his mobility and enjoy the outdoors! Please wish Asher a very happy birthday tomorrow and pray for his health and safety! God Bless, Asher! |
★Please pray for Kyshon. Kyshon has a Ependymoma brain tumor and has been in treatment at
Maria Fareri Children's Hospital for years. He has relapsed multiple times and after his last relapse he was getting treatment at Memorial Sloan Kettering Cancer Center on a trial. This past weekend, Ryan’s Foundation was able to drop off a check at a small local fundraiser the family was having. The money raised is going to go towards a wheelchair accessible van for the family. Please pray for Kyshon and his family |
★Meet 7-year-old Chelsea. She was born with craniosynostosis multiple and so far, has had 43 surgeries. Craniosynostosis is a rare type of multisuture synostosis, in which more than one suture (joint) between a baby’s skull bones fuses too early. This congenital (present at birth) condition causes problems with brain growth and head shape. This is because the head stops growing in the areas where the sutures have fused, and expands abnormally in other areas.
Chelsea is home schooled and has therapies at home and is nonverbal. Ryan’s Foundation was able to help Chelsea’s family by paying their mortgage. In turn, the family was able to move forward with plans to make Chelsea’s room more accessible. Ryan’s Foundation will do whatever it takes to save the child, the family, and to live out our mission to never say no. God Bless Chelsea and her family. |